In Memory of Ellen Hovey

In Memory of Ellen Hovey
October 2017
We are sad to announce that one of our founding members, Ellen Hovey, passed away recently. Ellen contributed to our community in so many ways, and we are grateful for the time we had with her. If you would like to help support her family please visit this page, ‘In Memory of Ellen Hovey’.

Passion and positivity characterized Ellen Hovey as most of us in the Down syndrome community knew her. She welcomed countless new parents into the Down syndrome family and gave us hope through her encouragement and example.

Ellen was a woman of faith who placed her relationship with God and her family, Dave and Jeremy, above all. She was a steadfast friend and powerful voice in the special needs community, opening her home every month for years to host the SVDSN Educational Advocacy Meeting.

Ellen believed in the power of inclusion and raising awareness of all that individuals with Down syndrome can do. She founded the Bay Area Buddy Walk in 2005 and served as the Buddy Walk chair in recent years, even as she was battling cancer. She spearheaded celebrations in San Jose on World Down Syndrome Day. She pulled together family dinner nights to connect families and build a community of support. She answered countless emails and posts on the message board, providing guidance, practical advice, and hope. She worked tirelessly supporting organizations that helped people with Down syndrome in various ways, such as Parents Helping Parents and Dale Law Firm.

She fought every battle that came her way with grace and patience, advocating for her son to ensure he had every chance available and finding ways to pave a path for those following after.

As a mother, Ellen empowered her son to advocate for himself and to be independent in the world. She taught through her example advocating for our children but also empowering them to carry the torch and advocate for themselves. She encouraged parents to believe in themselves, to embrace their power of knowing their child best, and to fight the good fight while remaining positive.

 

Ellen demonstrated the power of building bridges, bringing together community, and leading the charge. She provided us with an example of how to raise our children to open doors and break barriers.

 

Ellen will be missed deeply by the SVDSN community of families. She touched many lives through the outreach and work that she did through the years. We will carry her in our hearts as we remember all that she did and will do our best to continue the work that she believed in so deeply.

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World Down Syndrome Day 2015

Title: World Down Syndrome Day 2015
Location: Santana Row in San Jose, CA
Description: Celebrate World Down Syndrome Day with SVDSN at Santana Row in San Jose, CA. Music, dancing, and light refreshments.

Thank You Maggiano’s Restaurant for providing the refreshments.
Start Time: 5:30 P.M.
Date: 2015/03/21
End Time: 9:00 P.M.

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World Down Syndrome Day

Title: World Down Syndrome Day
Location: Santana Row, San Jose CA
Description: Celebrate World Down Syndrome Day with SVDSN at Santana Row in San Jose, CA Music, Dance, and light refreshments.

Thank You Maggiano’s Restaurant for providing the refreshments.
Start Time: 5:30 P.M.
Date: 03/21/2015
End Time: 9:00 P.M.

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World Down Syndrome Day March 21st, 2015

World Down Syndrome Day March 21st, 2015

March 21st (3/21) is World Down Syndrome Day. Come celebrated with Silicon Valley Down Syndrome Network on the 21st day of the third month of the year. The date is symbolic of the third copy of the 21st chromosome which characterizes Down syndrome.

March 21, 2015 marks the tenth annual World Down Syndrome Day, the fourth official date since it was recognized by the United Nations in 2011. People with Down syndrome, their families, friends, teachers, coworkers and supporters will be celebrating across the globe.

“It is important to celebrate World Down Syndrome Day on March 21 because there should be a day to celebrate the needs of people with Down syndrome. We are able to do things that other people can and can not do – just like anybody from around the world,” says National Down Syndrome Society (NDSS) Goodwill Ambassador Chris Burke. “No matter who we are or where we live, give us a chance to do something with our lives so we can look forward to the future.”

There are over 400,000 Americans living with Down syndrome. It is the most common chromosomal condition. Please join Silicon Valley Down Syndrome Network and the NDSS on March 21 in celebrating the value, acceptance and inclusion of people with Down syndrome.

Silicon Valley Down Syndrome Network will be celebrating at Santana Row in San Jose, California. The festivities will be held on the stage located on the conner of Olin Ave. and Piazza Di Valencia, across from Maggiano’s Restaurant. There will be music, dancing, and light refreshments. The event will begin at 5:30 P.M. and will end at 9:00 P.M.

Santana Row is located at 377 Santana Row, San Jose CA, near Steven Creek Blvd. and Winchester Ave. Clcik on the link for a map of Santana Row. http://www.santanarow.com/map>

Special Thanks to Maggiano’s Restaurant for providing the light refreshments.

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Feedback on the Hanen Workshop by Janette Najar

The Hanen class was AMAZING and I would thoroughly recommend it for parents as well as speech therapists as well as any caretakers. There is a book which I bought to go with the class “It takes Two to Talk”. The instructor gave us a workbook as well to do weekly assignments and the more you put into the class the more you get out. The instructor came to our home twice and video taped us interacting with our daughter and showed us ways to improve. We dissected it piece by piece and it was so helpful. I leaned never to say to my daughter “Say blah blah blah.”

I learned what communication style my child likes and what stage she is at so I can tailor the way I talk with her. She can only communicate with one word at a time so using anymore than 2-3 words at a time is too much for her. I learned to OWL (observe, wait and listen). It takes Sarah about 5-7 seconds sometimes to understand what we are saying and then another 5-7 seconds to respond; so OWLing is so important.

I couldn’t believe by just waiting how much my daughter was telling me with looks, pointing, etc…; which I didn’t pick up on before doing this workshop. Before, I would just talk, talk, talk and she couldn’t get a word in edge wise. I learned to follow my daughter’s lead, instead of leading her. I learned how to play, read books, and interact with music in ways I hadn’t before.

Yes, I would definitely recommend the class.

Janette Najar

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Dad’s Night Out

Title: Dad’s Night Out
Location: The Garret Pizzeria (1777 S Bascom Ave, Campbell, CA 95008)
Description: Leave the kids at home, come out, and meet other SVDSN dads.

We will buy you pizza and you can buy your own drink!

Start Time: 18:00
Date: 2014-06-26
End Time: 21:00

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Dad’s Night

Dad’s Night Out

 

 

date: Thursday, April 17, 2014

 

time: 6 pm – 9pm

 

location: The Garret Pizzeria

 

1777 S. Bascom Avenue

 

Campbell, CA 95008

 

 

 

Leave the kids at home, come out, and meet other SVDSN dads.

DadsNightPhoto

 

 

 

 

 

 

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SVDSN goes to Washington

DSC_0085    DSC_0016  Thursday February 27, 2014 was the Buddy Walk on Washington D.C. and SVDSN was there, braving the cold weather, to advocate for Down syndrome. The SVDSN delegation, Dashiell, Marisol, Kristin, Bill, and Eric marched the halls, talked with California Senators and House Representatives (mainly staff), and advocating for legislative changes; which could  improve the lives of person with Down syndrome.

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The Buddy Walk on Washington, sponsored by the National Down Syndrome Society; which SVDSN donates 7% of the Bay Area Buddy Walk proceeds to, is the main legislative group lobbying Washington D.C. on behalf of persons with Down syndrome. This year’s Buddy Walk on Washington D.C. had the most participants is the history of the Buddy Walk on Washington D.C., with close to 320 participants advocating Capitol Hill for votes and funding. This year California had fifteen participants, seven from Northern California and and eight from Southern California.

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To learn more about the Bddy Walk on Washington go to:

http://www.ndss.org/Advocacy/Advocacy-Programs/Buddy-Walk-on-Washington/

If you have interest in joining the SVDSN Legislative Advocacy Group and help SVDSN advocate local, state, and federal politicians, contact Bill O’Dea at info@svdsn.org.

Thank You,

Bill O’Dea

SVDSN Governing Board

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Handwriting Without Tears Workshop in San Jose, CA

Hi everyone,
Handwriting Without Tears is having a set of workshops in the Bay Area (San Jose) on March 21-22. The SVDSN Board has agreed to subsidize 50% of the cost of any of the workshops, and I will coordinate the registration so we can get the early-bird group discount.
Please take a look at the programs offered and let me know which ones you want to register for.
(Single Workshops)
Pre-K Literacy and Math Workshop (Friday afternoon, March 21), early bird price of $215 ($107.50 with SVDSN discount): http://shopping.hwtears.com/product/ZCA032114M/M
Pre-K Readiness and Writing Workshop (Friday morning, March 21), early bird price of $215 ($107.50 with SVDSN discount): http://shopping.hwtears.com/product/ZCA032114P/P
K-5 Handwriting workshop (Saturday all day, March 22), early bird price of $270 ($135 with SVDSN discount): http://shopping.hwtears.com/product/ZCA032114R/R
 
(Combination Workshops)
Pre-K (Readiness & Writing + Literacy & Math) (2 workshops) ( Friday all day, March 21), early bird price of $350 ($175 with SVDSN discount): http://shopping.hwtears.com/product/ZCA032114G/G
Pre-K Readiness & Writing + K-5 Handwriting (2 workshops) (2 days, March 21-22), early bird price of $370 ($185 with SVDSN discount): http://shopping.hwtears.com/product/ZCA032114C/C
Pre-K Literacy & Math + K-5 Handwriting (2 workshops) (2 days, March 21-22), early bird price of $400 ($200 with SVDSN discount): http://shopping.hwtears.com/product/ZCA032114K/K
 I will submit all of the registration together, so if you would like to attend, please contact me off-line and I will send you the instruction for how to submit your registration.
I need to collect all registration forms by February 17 (Monday) to ensure space in all of the classes that families would like to take.
In order to do group registration, I need around 10 people. Different workshops is fine; we just have to register all together. If we have more than 10 people to register, we can receive a lower group rate on top of the early bird discount, so please don’t send any checks to VMCF yet. We will pay all together with one check from them to account for the subsidized amount that SVDSN is providing. I will confirm final amounts that you will need to send to VMCF when we get the group registered.
As always, scholarships are available to SVDSN members, so just email me if you need additional assistance to participate.
Please let me know if you have any questions.
Emi Mason 408-687-5915  (emineko@pacbell.net)
(for the SVDSN Board)
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Working Towards a Brighter Future Video

The SVDSN Governing Board would like to thank everyone who attended the Working Towards a Brighter Future Conference hosted by Special Needs Resource Events (SNRE) & Silicon Valley Down Syndrome Network (SVDSN).

Click on this link to view a video recording of the conference.

https://drive.google.com/file/d/0ByI-2z07zE-bVHVkREJ6ei15bEU/edit?usp=sharing

Click on this link to download a video recording of this conference.

https://app.box.com/s/40a89cze1b8yoenfoupx

The SVDSN Governing Board appreciates all of the organizers who volunteered their time to make the Working Towards a Brighter Future Conference a reality.

 

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