Signing Time Concert to benefit Down syndrome research

Title: Signing Time Concert to benefit Down syndrome research
Date: 2014-03-22

South San Francisco High School
400 B Street
South San Francisco, CA 94080

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Annual SVDSN Holiday Party

Title: Annual SVDSN Holiday Party
Location: Mountain View Senior Center 266 Escuela Avenue Mountain View, CA 94040
Start Time: 6pm
Date: 2013-12-07
End Time: 9pm

This was the biggest Holiday Party EVER!

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Working Toward a Brighter Future Educational Conference

Title: Working Toward a Brighter Future Educational Conference
Location: Cathedral of Faith Church Multi-Purpose Room in The Learning Center 2315 Canoas Garden Ave San Jose, CA 95125
Description: Speakers include…

Linda Chan-Rapp, M.A., Founder of the 21st Blessing online community

“Take Five”– Do you have five minutes? Take advantage of those extra moments to boost learning, reenforcing key concepts in ways that appeal to visual and kinesthetic learners. Take away an array of games, songs and hands on activities for home or group settings to compliment instruction in beginning math, oral motor strength, expressiveness, social awareness and more.

Jami Hamel De La Cerda, M.S., Sp. Ed., Founder Diamond Learning Center

“Bridging Communication So You Can Have it All” – Creating a vision through communication, partnering and developing a  community for a  lifetime of learning.

Deby Hergenrader, Co-Founder of Break the

“Now you see it. Now you don’t!” Some see disability while other see ability. Find out how to get there by dealing with managing behavior, transitions and social challenges.

Closing Speaker
Randy Fujishin, M.A., Conference Speaker, Therapist, Teacher,  Author of seven books and founder of

Start Time: 8:45am
Date: 2014-01-18
End Time: 1pm

$30.00 per person (includes lunch)
Free Respite (limited spaces available)
Lunch is $5.00 for children in respite
       To register please mail check to:
       Special Needs Resource Events
       1999 S. Bascom Ave. Ste. 700
       Campbell, CA  95008
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A Father’s Confession

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Free “Fullpower” Adult workshop

Title: Free “Fullpower” Adult workshop Canceled
Location: Mountain View Senior Center 266 Escuela Avenue Mountain View, CA 94040
Description: This workshop is free to persons 18+ with Down syndrome. It will focus on personal safety in the workplace. Contact Kristin Meier to register.
Start Time: 02:00pm
Date: 2013-09-07
End Time: 04:00pm

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Disability Awareness Night

Title: Disability Awareness Night
Location: San Jose Municipal Stadium
Link out: Click here
Description: Enjoy a free baseball game as the San Jose Giants battle the Inland Empire 66ers in this exciting community event celebrating persons with disabilities, their families, care providers, and the community-at-large on August 16th at the San Jose Municipal Stadium.
Go to to secure your FREE tickets to attend the 5th Annual Disability Awareness Night with the San Jose Giants.
Start Time: 06:00pm
Date: 2013-08-16

A good time was had by all and SVDSN was honored with it’s very first award, graciously accepted by members of the board of directors and Buddy Walk committee.

2013-08-16 19.08.212013-08-16 19.07.28

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Macy’s Shop For a Cause Day August 24th! Get your shopping pass today!

Title: Macy’s Shop For a Cause Day
Location: Any Macy’s Store
Description: Make a $5 donation to the Buddy Walk team donation page of “Matt’s Ninja Warriors” Matt’s mom will send you a shopping pass worth 25% off almost everything at Macy’s, even sale items, as well as a chance to win $500 from Macy’s. Act fast!

Date: 2013-08-24

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Family Dinner Night

Title: Family Dinner Night
Location: Sweet Tomatoes 625 Coleman Avenue San Jose
Start Time: 17:00
Date: 2013-09-21

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Sun Camp…Growing up together

Having a wonder time, wish you were here!

Jr. Counselor helps a camper.

Jr. Counselor helps a camper.

Sibs at Sun Camp

Sibs at Sun Camp

Math, reading and writing disguised as fruit salad!

Outdoor play: water painting, playdough, bubbles and more!

Playground fun and a lesson in taking turns.


Decorating super hero capes.
Splashing sisters

Splashing sisters

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Justice for Ethan Saylor

Robert Ethan Saylor, a 26 year old young man with Down syndrome, died on January 12th at a movie theater in Frederick, Maryland, while being restrained by three off-duty sheriff’s deputies.  While his death was ruled a homicide, there have been no charges. Ethan’s sister, Emma Saylor made a call for answers in the Washington Post upon which I could not improve. There are also a plethora of passionate bloggers. I cannot add to their outrage. Get it straight from the Saylor Family at Justice for

What can I do?

Sign a petition

There is a petition on, by Special Needs Network, appealing directly to Sheriff Charles Jenkins, Frederick County Police Department and J. Charles Smith, III, Office of State’s Attorney for Frederick County.

There is another petition on the same site by Down Syndrome Uprising, addressed to Doug Gansler, Attorney General of Maryland.

This petition, also on started by Emma Saylor herself appeals directly to the Governor of Maryland.

Direct appeal

The Down syndrome communities across the country continue to call for an independent investigation into the homicide of Mr. Saylor. In a recent action alert from the NDSC and NDSS , while commending Governer O’Malley for establishing a commission for “Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities in Maryland,” still calls for people to contact the Governor Martin O’Malley of Maryland to continue to ask for an independent investigation.


On October 17, 2013 the Saylor family filed a civil suit   (correction to the linked article: Ethan’s asphyxiation was NOT “brought on by his Down syndrome”) in Baltimore, Maryland against the sheriff’s county deputies, Westview Regal Cinemas and others for the wrongful death of Ethan as well as a violation of his civil rights.

Spread the word

Share these links with everyone. The media, by and large, have dropped the ball on this story.
SVDSN has dedicated the 2013 Bay Area Buddy Walk to the memory of Robert Ethan Saylor.

Don’t forget: Justice for Ethan!

ethan banner copy

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