SVDSN is a network of people who have a family member with Down syndrome. We are not medical or mental health experts. If you would like to talk to a parent in our group, send us an email ( and someone will get back to you via email or phone, as soon as possible. If you have an emergency that requires immediate attention, please call 911 or other appropriate crisis line.

Lucielle Packard Children’s Hospital Parent Information and Referral Center

(650) 498-KIDS, (800) 690-2282

Parents Helping Parents (PHP)

Phone number (408) 727-5775

Toll Free in CA (855) 727-5775

National Parent Helpline
Phone: 855.4APARENT (855) 427-2736 (available 10 a.m. to 7 p.m., PST, weekdays)
Whom They Help: Parents and caregivers needing emotional support and links to resources

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